You're Dying; When Do You Turn Off The Defibrillator?
Carol Filak had heard about painful, repeated shocks that people sometimes experience from those implants in their final days. So when her father, Joseph Hoffman, was diagnosed with terminal cancer, she asked at his cardiologist's office: What about the defibrillator he'd had implanted years earlier? It's too soon to worry about, she was told.
Two months later, Hoffman, 81, entered hospice care in his West Orange, N.J., home and still Filak had to make numerous calls to the cardiologist before someone arrived to deactivate the defibrillator. "You need to be told that this is something that's not going to prolong his life," says Filak. "When he died, it was a very peaceful death."
It's not unusual for health professionals to avoid the topic, says Dr. Nathan Goldstein of New York's Mount Sinai Medical Center. His research, published this month in Annals of Internal Medicine, suggests most hospices — expert in end-of-life care — aren't making defibrillator decisions part of their routine. Nearly 60 percent of hospices he examined had at least one patient shocked within the past year, sometimes multiple times at once. Yet just one in 20 hospices had a method even to identify who harbored the implant when they entered the program.
But with more than 100,000 implantable cardioverter-defibrillators, or ICDs, inserted every year, more and more families like Filak's will face the question.
"We're trained to save, save, save, cure, cure, cure," says Goldstein, who has studied end-of-life defibrillation since seeing a dying lung cancer patient brought to the emergency room because his implant kept firing. "There are some folks we can't cure. We have to make them as comfortable as possible."
Labels: defibrillators, end of life care, hospice, over-treatment, prolonging death
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