Thursday, April 1, 2010

Matrimonial Fools.

Holidays are for memories. And if April Fool's day signifies anything for me, it is a reminder of my dear, odd, steadfast and enduring grandparents, Aaron and Florence. They married on April 1 a bazillion years ago and celebrated their 60th wedding anniversary well before they died, in 2004 and 2005.

As a child, they were my rock and foundation when my own father and mother struggled in and out of marriage and parenting. What I wouldn't give for an hour of their company sometimes, I can't say....

UPDATE: For almost 40 years, my immediate family has gathered at my father's house to celebrate Easter. Our tradition is to come together over ham loaf, amish crackers or whatever my father, when alive, found fit to kill and cook over an open fire. Then we stand in a circle and pray, eat, then hike back through the glen to the Susquehanna river. It's a tradition that's lost much of its holy symbology but one that we value as a family. While some were sadly not present this year - a inexplicable, very unfortunate trend that commenced since a number of deaths in our family - we kept to the tradition and made it about half way to the river. A glorious day complete with a new baby, a meal outside, and brilliant community. It was also a great time to ask about some family history: my grandparents were married in 1934.

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Reports on the 5th Anniversary of the Death of Terri Schiavo.

Here are some links and commentary from yesterday:

Family Research Council has new "guidelines" for end of life care

Jason Poling, a pastor, writes for In Good Faith blog at the Baltimore Sun about the ironies of the Religious Right's demonization of Michael Schiavo while supporting traditional marriage.

Americans United for Life is justified in making up their own facts so long as it's for a godly cause

North Country Gazette podcast link, with Bobby Schindler (ususal "murder" stuff)

Arizona Daily Star offers resources for those planning for end of life care

Psalm123 Blog "Martyr of the Culture of Death"

Bobby Schindler at Town Hall spinning Schiavo's death as "cruel bigotry" against the disabled

Stephen at Not Dead Yet

Minnesota Citizens Concerned for Life derides "quality of life" discussions

David Casarett, MD, at HuffPo, "As a palliative care physician, I was fascinated, amused, shocked and embarrassed, in more or less equal measure, by the myths that circulated about end-of-life care." And a clip:

And I was embarrassed that instead of engaging in a thoughtful dialogue about how we die, and how we should die, for several months we were immersed in a shrill shouting match about issues that bear no relation to the reality that my patients and I face every day. In short, as that public debate was unfolding, I felt very much the same way that I felt as the nation watched Terri Schiavo's story reach its conclusion in 2005.

And that reflection is ironic, because the advance care planning legislation that sparked the death panel debate was designed to prevent the sort of family disputes that made Terri's care so difficult. But what should have been an unobjectionable provision in the health care reform legislation quickly became mired in partisan rhetoric and outlandish rumors. A straightforward mechanism to promote choice and autonomy was quickly reframed as precisely the opposite. Looking back on those events, it's difficult to believe that we're any closer to an open dialogue about death and dying than we were five years ago.

In fact, a dialogue may be even less attainable now. As if the "death panel" label weren't destructive enough, recent health care reform discussions have linked end-of-life care to cost-savings and rationing. So whereas five years ago the public was afraid that family members might "pull the plug," now those fears have focused on Congress.

It's no surprise, then, that Congress has shied away from end of life care. As a result, advance care planning was never given the consideration it deserved in the Senate bill and eventually dropped out of sight. In fact, it's unlikely that we can expect any meaningful end-of-life care legislation from Washington in the foreseeable future. End-of-life care has proven to be too divisive, and too politically dangerous.

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